Suite101

General Medicine

© Anthony Lee

Graves Disease

  1. jjjspr
  2. nurseheatherone
  3. Elaine Moore
  4. Elaine Moore
  5. nurseheatherone
  6. Elaine Moore
  7. nurseheatherone
  8. kiolli
  9. Elaine Moore
  10. Elaine Moore

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442.   Aug 12, 2007 12:49 AM

» jjjspr - Under-active thyroid gland


Hi
I've been on thyroxine all my life as I was diagnosed at birth with an under active thyroid. My current dosage is 125mcg daily. I'm 24.

My concern is I forget to take it. I know it sounds stupid as its only 2 little pills which have been part of my life for 24 yrs but I honestly can't remember.

I'm worried about dying. Am I being silly or is this a real possibility? Seen as I've had this since birth I know very little about it really.

-- posted by jjjspr


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443.   Aug 12, 2007 9:03 AM

» nurseheatherone - Newly diagnosed with Graves Disease

In response to Newly diagnosed with Graves Disease posted by daisyelaine:
HI Elaine, I read the article on carnitine and started taking it yesterday! my pills come in 500mg dosages and I am wondering how many grams would be helpful to start out at, I took 1 gm yesterday( my pee turned bright yellow!). Also I was wonderingif a B-complex would be helpful as well? I am very interested in starting some other supplements as well. As far as diet goes I have already been doing a good carb low fat diet with lots of fruits and veggies although I once tried to cut out dairy and wheat and my stomach was not very happy. I do consume splenda products and stevia but try to avoid aspartame and have not been taking my multivitamins in fear of excess iodine( what is the ingrediant name I am looking for in these pills?). Any other advice of things to add or remove from my diet that would be helpful? Also I really appreciate all of your info, I am now going to get a 2nd opinion with another endo to see maybe if PTU is the way to go instead of RAI even during pregnancy. I guess my fear is miscarriage or Tyroid storm in pregnancy if my thyroid becomes difficult to control.
Thanks so much!
Heather

-- posted by nurseheatherone


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444.   Aug 13, 2007 5:01 PM

» Feature Writer Elaine Moore - Under-active thyroid gland

In response to Under-active thyroid gland posted by jjjspr:
Hi,
It sounds like you have a congenital form of hypothyroidism. You must be producing some thyroid hormone of your own or you'd be on a higher dose of replacement hormone.
People who need full replacement hormone can go into myxedema coma if they miss taking their replacement hormone for 6 weeks. I'm not sure that your hypothyroidism is severe enough for that to happen.

However, hypothyroidism itself, which can occur if you forget to take your dose for 3 days or longer, can have unpleasant symptoms including depression, joint pain, constipation, weight gain, hearing loss, and others.

If you're on levothyroxine, missing a dose here and there shouldn't affect your levels much. But if you do it too often, it will affect blood test results and your dose could be mistakenly increased. Best, Elaine

Suite101
Feature Writer Elaine Moore
Feature Writer for Spas


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445.   Aug 13, 2007 5:06 PM

» Feature Writer Elaine Moore - Newly diagnosed with Graves Disease

In response to Newly diagnosed with Graves Disease posted by nurseheatherone:
Hi Heather,
1 gram of carnitine is a good dose for relieving hyperthyroid symptoms. B complex is helpful too since B vitamins benefit the nervous system.
Carnitine shouldn't turn your urine yellow although B vitamins will.
Iodine in multivitamins is listed as either iodine or kelp. There are multivitamins free of iodine available and they'd be helpful to take. Calcium and magnesium along with vitamin D would also be helpful.
You'll want to get your levels in control before becoming pregnant. Once they're in control, they should settle down even more during pregnancy. Often, women move into remission during pregnancy as the immune system slows down. Best, Elaine
Suite101
Feature Writer Elaine Moore
Feature Writer for Spas


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446.   Aug 13, 2007 6:57 PM

» nurseheatherone - Newly diagnosed with Graves Disease

In response to Newly diagnosed with Graves Disease posted by daisyelaine:
Ok it must have been the B-complex, that caused the yellow. I was taking fish oil and a one a day multivitamins which also contain fish so that is why I stopped taking them. Do I have to limit seafood and avoid these supplements?
I was not planning on trying to start to concieve for about a year from now in hopes that I would be eutyhroid and feeling better by then. My doctor had planned on 6 months of ATD( Tapazole) and then RAI. This is what she said thats what she would do if she were me. Now I am hoping that I can at some point switch to PTU and stay on it and then in about a year if healthy try to get pregnant. when would be a good time to switch?
I have been looking at some of your articles and wondering if you would recommend trying to give up wheat and dairy?

-- posted by nurseheatherone


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447.   Aug 14, 2007 9:45 AM

» Feature Writer Elaine Moore - Newly diagnosed with Graves Disease

In response to Newly diagnosed with Graves Disease posted by nurseheatherone:
Hi,
Fish oils are ok because iodine and other contaminants are removed during the manufacturing process. Most people with autoimmune disorders are low in omega-3 oils and both fish oils and flaxseed oil help correct these deficiencies.
You can switch from Tap to PTU in early pregnancy if you're still on ATDs. By then, your dose should be quite low and you may be in remission if you keep up with diet and other lifestyle changes.
Dairy is usually high in iodine because iodine is used to clean equipment used for milking. Many adults are lactose deficient and have trouble digesting milk and dairy products. And some dairy products have too much saturated fat. Avoiding it can be very helpful.
Those of us with GD are more likely to have gluten sensitivity, and this disorder is turning out to be very common in the general population as well. Most naturopaths recommend that we avoid wheat, rye, and barley.
Best, Elaine
Suite101
Feature Writer Elaine Moore
Feature Writer for Spas


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448.   Aug 14, 2007 12:22 PM

» nurseheatherone - Newly diagnosed with Graves Disease

In response to Newly diagnosed with Graves Disease posted by daisyelaine:


Hi Elaine, I really appreciate all of your responses, they have been extremely helpful in hopefully getting me off to the right start with my treatment. I just made an apt. with a naturopath for the end of the month to get some further guidance.
As far as diet and supplements go, I am assuming that all seafood and multivitamins that say they contain fish ( cod ) are also to be avoided. I will definetely start taking my fish oil again as well.
Thanks again,
Heather

-- posted by nurseheatherone


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449.   Aug 15, 2007 7:54 PM

» kiolli - Post RAI-now Hypo taking generic synthroid

In response to Post RAI-now Hypo taking generic synthroid posted by daisyelaine:


Elaine
Sometimes I feel the symptoms I felt when I was hyperthyroid before RAI on 100mcg of generic synthroid even though my TSH and free T4 are fine. You said you feel better on Armour. Would that make me feel more even keel? If I ask my physician to switch-Do I have to wean off the generic synthroid or do I just start at a similar dose of Armour? I am so sensitive I am scared to switch. I had a bad experience switching from generic to the real synthriod-it knocked me for a loop. It hit me too hard-it kicked in differently. After a month of torture I switched myself back to generic and felt better soon after but it took weeks to recover totally from it! Also I am trying hard to loose weight and am wondering if that is why I am feeling a little hyper-maybe at 5 lbs lighter the medication is hitting me harder and I understand it takes 5-6 weeks to appreciate a difference in lab values with any dosage change. Do I keep losing weight or do I ask to lower my dosage first? This is such a balacing act! I appreciate your time! Kim

-- posted by kiolli


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450.   Aug 16, 2007 10:11 AM

» Feature Writer Elaine Moore - Newly diagnosed with Graves Disease

In response to Newly diagnosed with Graves Disease posted by nurseheatherone:
Hi,
Multivitamins with fish oil are ok because of the manufacturing process removing iodine. Today, more multivites are adding fish oil because it's a good source of omega-3 oils.
You want to avoid shellfish because they're high in iodine. Other fish are ok but if you think they may have been salted, soak the fish in water.
For multivites you particularly want to avoid iodine and kelp. Best, Elaine
Suite101
Feature Writer Elaine Moore
Feature Writer for Spas


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451.   Aug 16, 2007 10:18 AM

» Feature Writer Elaine Moore - Post RAI-now Hypo taking generic synthroid

In response to Post RAI-now Hypo taking generic synthroid posted by kiolli:
Hi Kim,
You want to look at your FT3 results before deciding if you need Armour. And since you've lost weight, you want to look at your FT4 level too. Most people do not do as well on generic levothryoxine as brand names. It could be that a dye or filler in your brand name meds caused the problem. That occasionally happens and when people switch to a different dose, like taking 2 of the .05 tablets rather than 1 of the 0.1 tablets they improve.

If generic products work for you, look at your lab results. If FT3 is low you could stay on your generic product and add a product containing T3 such as Cytomel. If you're sensitive to meds you'd want to make any changes slowly.

Normally, our body would be making different amounts of thryoid hormone every day depending on our diet, general health, temperature, stress level and other factors. When we're on replacement hormone we expect one daily dose to work but it can't. Some days the dose will be too much and on some days it won't be enough. Some people, like me, adjust their dose with the seasons and how I feel, but it's still difficult to maintain perfectly stable levels. Best, Elaine

Suite101
Feature Writer Elaine Moore
Feature Writer for Spas


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